Scoping review on patients access to mental health records


Annika Bärkås at MTSI is shared first author on a recently published scoping review. The research was performed partly within the NORDeHEALTH project, and is the first scoping review study collating existing evidence about sharing EHRs or clinical notes with people treated for mental health conditions.

The study aimed to map available evidence on patient accessible electronic health records in mental healthcare. Thirty-one scientific articles from the USA, Sweden, Norway, Netherlands, Canada, the UK, and Australia were included in the review, with most surveys and qualitative methods. The study results show a predominance of positive experiences among service users, such as increased feelings of validation and a sense of control, while healthcare professionals frequently express a perceived burden and apprehension. The results align with prior studies on patient-accessible EHRs and clinical notes in general medical settings. This study also reports the experiences of care partners, such as family members and friends, and views of policy stakeholders and experts. There is a major research gap on the evidence of sharing EHRs or clinical notes with people affected by mental health conditions and further research is needed.

Schwarz J, Bärkås A, Blease C, Collins L, Hägglund M, Markham S, Hochwarter S. Sharing Clinical Notes and Electronic Health Records with People Affected by Mental Health Conditions: Scoping Review. JMIR Mental Health. 2021;8(12):e34170.
doi: 10.2196/34170. PMID: 34904956.